Data Opt Out

Posted by: samanthaderrick - Posted on:

There have been a number of reports in the media over the last couple of days, including the BBC1 programme “The One Show” about the NHS “selling” patient information & the National Data Opt Out (NDOO)

For clarity, the NHS does not sell patient level information

Type 1

You can also tell your GP practice if you do not want your confidential patient information held in your GP medical record to be used for purposes other than your individual care. This is commonly called a type 1 opt-out. This opt-out request can only be recorded by your GP practice.

https://digital.nhs.uk/about-nhs-digital/our-work/keeping-patient-data-safe/how-we-look-after-your-health-and-care-information/your-information-choices/opting-out-of-sharing-your-confidential-patient-information

Type 2

Previously you could tell your GP practice if you did not want NHS Digital to share confidential patient information that we collect from across the health and care service for purposes other than your individual care.

Any patient  who now wishes to register for the Type 2 opt out must do so via the NHS Digital website https://digital.nhs.uk/services/national-data-opt-out ( This address is also on your privacy notice).

Also, there have been numerous references to registering to Opt Out by 23 June & 1 July.

On the 1st July the General Practice Data for Planning and Research – https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research will become operational.

This new system of collecting information is replacing General Practice Extraction Service which has been in use for about 10 years. It will also help to support the planning and commissioning of health and care services.

If the patient has already registered for Type 1 opt out the information will not be collected.

If a patient registers for Type 1 by the 23rd of June then the information will not be collected starting 1st July.

The patient can still register for Type 1 at any other date and this will be honoured, although NHS Digital may  have already collected some information, which will still be held.

For more information and to make your decision about NDOO please visit the website below:

https://digital.nhs.uk/services/national-data-opt-out